CONTACTS AND RESOURCES
*To download any sites below, click on the gold colored phrase;  then click on the blue address that appears. 

​A. Local Contacts            B. On-Line Resources            C. Past Presentations               D. Books/Magazines                      E. Programs    
​

A. Local Contacts

PSGFL   Parkinson Support Group of the Finger Lakes (Canandaigua, NY) Site and Email
www.parkinsonsupportgroupofthefingerlakes.com
​ psgfl2002@gmail.com
​
​Parkinson's Foundation New York and New Jersey (Rochester)
585-234-5355
www.parkinson.org/NYNJ

Support for Caregiver of a Veteran or a Veteran who is a Caregiver
https://www.caregiver.va.gov/Care_Caregivers.asp
     

B. On-Line Resources

1.  Michael J. Fox Foundation for Parkinson's Research:   https://www.michaeljfox.org

2.  Parkinson's Foundation:   https://www.parkinson.org

3. American Parkinson Disease Association  https://www.apdaparkinson.org/

4.  New      As a Parkinson Disease patient or care partner, we are faced daily with the struggles with the disease. Yet, other happenings in our world also continue to affect us, grief after a loss being one of them.  We may have had a good friend move away, lose a special pet, not get the job we thought we had, or dealt with long term care giving, all of which can result in a form of grief.  But it is the death of a dear friend, a relative we were especially close to, or a spouse after a long or even short marriage that brings us to our knees. And grief is not a quick experience, and it is not the same for everyone. The similarities and differences are what Natasha Josefowitz addresses in a presentation at the University of California. 
 
Directions to open the link to this presentation.
You may have to slide the red circle to the left in order to start from the beginning. And of course, there may be some advertisement at the beginning which after 5 seconds, you can click on "Skip Ads".
Living Without the One You Cannot Live Without - Research on Aging - YouTube

​5. Edward is in a life improvement program in New York City and also suffers from Parkinson's disease. Besides thanking the Parkinson Support Group of the Finger Lakes for the resources on its website, Edward's daughter wished to pass on a website that has many recommendations for the Person with Parkinson such as exercise and diet our members might wish to view. We are not recommending any other advertised information on this site. 
 https://personalinjurylawcal.com/blog/living-with-parkinsons-disease-diet-and-exercise/   

6. MoveOverPD.com   is a website that offers another place to find information regarding Parkinson's Disease. A newsletter, "Pro-Activities", can be found under Media.

C. Past Presentations

2023 Presentations

January 25, Beware of Scams
www.youtube.com/watch?v=6Eck0ck_YRE

2022 Presentations

​Managing the Challenges of Aging  
https://youtu.be/IGmAMMrIpws

Beating the Winter and Drabby Spring Blahs docs.google.com/presentation/d/1ezfZik0q8rBwIO5DWLg5dUApUEVSUMdq/edit#slide=id.p1

Music Therapy 
​www.youtube.com/watch?v=kkRpHaDBpSs&list=PLjOQXgZCUzCMOXU7V10nZA_6VDCb2cNiV
​
​Legal Issues 
www.youtube.com/watch?v=Q3-pRTLBKa0&list=PLjOQXgZCUzCMOXU7V10nZA_6VDCb2cNiV&index=2


2021 Presentations 
​
Medicine Approaches to Parkinson Disease
stu_gillim_2021_presentation.docx

Speaking and Parkinson Disease  ​ docs.google.com/presentation/d/1Z0cAvmLVkuDJjBLURtUjCIZoyOvpXsNV/edit#slide=id.p3

2020 Presentations

Ontario County Office of the Aging  Presentation  
   parkinsons_pres_2020__1_.pdf

Stress Management Presentation  
https://youtu.be/t5uufoebSec

D. Books and Magazines​

Advice From a Parkinson's Wife: 20 Lessons Learned the Hard Way  Barbara Sheklin Davis  
​
Making the Connection Between Brain and Behavior: Coping with Parkinson's Disease Joseph H. Friedman, MD

Parkinson's Disease: 300 Tips​ Shelley Peterman Schwarz

Ending Parkinson's Disease: A Prescription for Action
1st Edition
Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD, Bastiaan R. Bloem MD, PhD

The New Parkinson's Disease Treatment Book: Partnering with Your Doctor to Get the Most from Your Medications    J. Eric Ahlskog, PhD MD 

Brain and Life​  magazine (formerly Neurology Now) Free subscription: www.brainandlife.org
Phone:   800-422-2681

E. Programs

1. Rock Steady Boxing and Safe-At-Home Physical Therapy
Download the following link for details
safe_at_home_brochure_.pdf  

2. Questions or information regarding driving and Parkinsons disease
​ Finger Lakes Driver Rehabilitation at 315-585-9198 or the website www.flxdriverrehab.com 
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