CONTACTS AND RESOURCES 

 A. Local Contacts                                                                 D. Books/Magazines
 B. On-Line Resources:  Check New items.                  E. Programs 
 C. Past Presentations                                        
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*To download any sites below, click on the gold colored phrase;  then click on the blue address that appears. 

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A.   Local Resources

PSGFL   Parkinson Support Group of the Finger Lakes (Canandaigua, NY) Site and Email
www.parkinsonsupportgroupofthefingerlakes.com
​ [email protected]
PO Box 131, Canandaigua, NY 14424
​   
​Parkinson's Foundation New York and New Jersey (Rochester)
585-234-5355
www.parkinson.org/NYNJ

Support for Caregiver of a Veteran or a Veteran who is a Caregiver
https://www.caregiver.va.gov/Care_Caregivers.asp

  Compassion and Support, an excellent resource for end-of-life support and planning
  compassionandsupport.org

​B.   On-Line Resources


1.  Michael J. Fox Foundation for Parkinson's Research:   https://www.michaeljfox.org

2.  Parkinson's Foundation:   https://www.parkinson.org

3. American Parkinson Disease Association  https://www.apdaparkinson.org/

4.  After a loved one passes away     Living Without the One You Cannot Live Without - Research on Aging - YouTube

     Suggestions after opening the site above. You may have to slide the red circle to the left in order to start 
      from the beginning. And of course, there may be some advertisement at the beginning which
      after 5 seconds, you can click on "Skip Ads".

         As a Parkinson Disease patient or care partner, we are faced daily with the struggles with
          the disease. Yet, other happenings in our world also continue to affect us.  
          We may have had a good friend move away, lose a special pet, not get the job we thought
          we had, or dealt with long term care giving, all of which can result in a form of grief.  But it is the
          death of a dear friend, a relative, or a spouse after a long or even short
          marriage that brings us to our knees. And grief is not a quick experience, and it is not the same
          for everyone. The similarities and differences are what Natasha Josefowitz addresses in the above
          presentation (#4) 
 

5.  MoveOverPD.com   is a website that offers another place to find information regarding Parkinson's Disease. A newsletter, "Pro-Activities", can be found under Media.      www.meoverpd.org/

6.  Eldercare Pages : care management, nutrition, home support, housing options, transportation                                                                                                     www.theelderpages.com
 
 7.  Freedom Care-Medicaid homecare program:  www.freedomcare.com

 8. Parkinson's Empowerment: sponsored by Safe at Home, PT:      www.safeathomept.com 
 (Once you open this site, click on "Parkinson's Empowerment")

"In this podcast we hope to help to help people living with Parkinson disease remain active and maintain/maximize independence by listening to others share their Parkinson's journey, hearing from clinicians and specialists, and keeping up to date with the latest research and resources." The many topics include: Gut health, Medication timing, Boxing, the BIG program, Personal journeys of those with PD.  A site worth your time. 

9.   New:  Jolene Brackey's Website which includes some of her presentations.
         
www. Jolene Brackey (enhancedmoments.com)


  

C.   Past Presentations

2024 Presentations
Mental Health Care for Person with Parkinson's and Caregiver
See notes for this meeting on the "Patient Corner" and "Care partner Corner" pages on this site. 




2023 Presentations  
Beware of Scams: January
www.youtube.com/watch?v=6Eck0ck_YRE 
Mental Issues and Parkinson's Disease: February
​youtu.be/vEGS_Y_KfQ8
Motor and Non-Motor Symptoms of PD: March
Parkinson Support Group Meeting 3/2023 - YouTube
Speech and Swallowing Issues: May
youtu.be/6Uem7tsU2xM
Questions and Answer Session with Dr. Stu Gillim: June
youtu.be/DNA7I6NAF6k
Assistance applying to Medicare and other types of services: August
August Parkinson 2023 - YouTube
Management of Parkinson Disease: Dr. Stu Gillim: November
Dr. Gillim's notes for this meeting are on the "Patient Corner" page on this site. 





2022 Presentations
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​Managing the Challenges of Aging  
https://youtu.be/IGmAMMrIpws
Beating the Winter and Drabby Spring  Blahs          docs.google.com/presentation/d/1ezfZik0q8rBwIO5DWLg5dUApUEVSUMdq/edit#slide=id.p1
Music Therapy 
​www.youtube.com/watch?v=kkRpHaDBpSs&list=PLjOQXgZCUzCMOXU7V10nZA_6VDCb2cNiV
​​Legal Issues 
www.youtube.com/watch?v=Q3-pRTLBKa0&list=PLjOQXgZCUzCMOXU7V10nZA_6VDCb2cNiV&index=2


2021 Presentations 
​
Medicine Approaches to Parkinson Disease
stu_gillim_2021_presentation.docx
Speaking and Parkinson Disease  ​ docs.google.com/presentation/d/1Z0cAvmLVkuDJjBLURtUjCIZoyOvpXsNV/edit#slide=id.p3

2020 Presentations

Ontario County Office of the Aging  Presentation  
 parkinsons_pres_2020__1_.pdf
Stress Management Presentation  
https://youtu.be/t5uufoebSec

D.  Books and Magazines   ​

New:  Creating Moments of Joy by Jolene Brackey     Although this book was directed toward patients with Alzheimer's, it offers so much for the Parkinson patients and caregivers. *See her website for more.

Advice From a Parkinson's Wife: 20 Lessons Learned the Hard Way  Barbara Sheklin Davis  
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Making the Connection Between Brain and Behavior: Coping with Parkinson's Disease Joseph H. Friedman, MD

Parkinson's Disease: 300 Tips​ Shelley Peterman Schwarz

Ending Parkinson's Disease: A Prescription for Action
1st Edition
Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD, Bastiaan R. Bloem MD, PhD

The New Parkinson's Disease Treatment Book: Partnering with Your Doctor to Get the Most from Your Medications    J. Eric Ahlskog, PhD MD 

Brain and Life​  magazine (formerly Neurology Now) Free subscription: www.brainandlife.org
Phone:   800-422-2681

E.  Programs

1. Rock Steady Boxing and Safe-At-Home Physical Therapy
Download the following link for details
safe_at_home_brochure_.pdf  

2. Questions or information regarding driving and Parkinsons disease
​ Finger Lakes Driver Rehabilitation at 315-585-9198 or the website www.flxdriverrehab.com 
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